I was recently invited to share some of the details of my personal story as a caregiver in honor of National Family Caregivers Month. We were asked to speak about what we’ve learned because of our caregiving experience; why we’re okay now, and to talk about the work we’ve done that may help today’s family caregivers. In sharing some of what I’ve learned from my caregiving experience with my husband, I thought I would borrow from a current TV celebrity that you may be able to relate to & tell you “what I know for sure about caregiving”:
- I know that it’s an act of love.
Without love, there would be no “care” in caregiving. This is the perfect time to let your loved one know how much richer your life has been because of them. You are forever linked by your shared history & love, and we know that love never dies.
- I know that the old normal is gone, replaced by a new normal.
What was the normal case may not be at this time, but the “new” that replaces it can also reflect love & care. Sometimes crises help us to figure out what’s really important in life, so don’t overlook the lessons & experiences offered in your daily activities
- I know that medical treatment can help manage the physical body & pain, but there are also emotional, mental & spiritual aspects to be considered as well.
In the flurry of activities surrounding treating the physical pain, don’t disregard the other equally important pain management for the whole being…both you & your loved one’s. It may not be easy, but discuss what you’re feeling with each other, and honor the emotions expressed—you will both feel supported by sharing.
- I know that lovingly remembering “what was” & finding joy in “what is” was my lifeline.
Take time to remember what your life has been together—for memories can light the flame of joy in the midst of today’s reality. Create ways to find joy right now with your loved one…you will be able to cherish these gifts over & over again in the future.
- I know that wrapping honor around your actions for your loved one brings comfort & consolation to you both.
In your busy actions as a caregiver, remember to let honor shape conversations as you weave it & good memories into what may be difficult caregiving tasks. Don’t let “busyness” overwhelm you and rob you of important opportunities to continue to demonstrate your love & care. Be present in what is happening right now.
- I know that the “care” in caregiving means compassionate care for both you & your loved one.
It’s important to keep perspective & balance during your caregiving phase. I found that our home became a beehive of activity: friends & family visiting; hospice workers helping with my husband’s physical care. Only through being attuned to my husband’s needs was I able to keep the connection strong during the hubbub.
And, as a caregiver, you also need to give to yourself, or you won’t have the energy or resources to continue to give to your loved one. LET OTHERS HELP—graciously say “YES” to friends’ offers. Allow yourself to receive others’ gifts of kindness with love while allowing yourself some time out to re-energize. You may feel guilty if you’re not there 24 hrs a day, but without time away to restore yourself, you are doing a disservice to all.
- I know that caregiving is often a “sacred passage”.
We never know what life will bring…and whatever the outcome, it will be a sacred & blessed journey because you traveled it together. My wish is that you stay strongly connected to your loved one, fully engaged in the experience & attuned to the source of your physical & spiritual strength.
- And, lastly, I know that YOU ARE NOT ALONE
It may feel that way many times, but just as you have been providing compassionate care to your loved one, you can also receive compassionate care by reaching out to others & staying connected to your spiritual grounding.
You may tend to hide your emotions in order to continue to go on each day—I hid behind my “I’m fine” mask with family, friends & coworkers—but, I also know that giving yourself permission to feel your true emotions & being true to yourself during the journey is critically important, and ultimately these became the cornerstones for my own healing.
I know that finding my spiritual touchstone & helping my husband to remain connected to his offered the emotional grounding needed to maintain some sanity in the swirl of insanity around us. And, I truly found that by accepting the love, concern and care offered by others, I became OKAY.
So, I would like to leave you with the thought that through love, support, & GIVING AND RECEIVING compassionate care, I’m OKAY, and YOU will be, too.
Blessings to you,
Sharon Clark